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Frequently Asked Questions
What does participation involve?
If you or your loved one takes part, we’ll need to see you – or them – twice. Once for screening (to assess if the study is right for you – or them) and once to administer the investigational imaging tracer and conduct a PET brain scan. The study participant may have a study partner to provide information on their behalf. The study partner will need to attend study visits where possible. We’ll call you shortly after the imaging visit to see how you – or your loved one – are feeling.
We will keep in touch with the study participant and their study partner. Then, within 72 hours of death, we’ll examine the study participant’s brain.
We understand that this is not an easy time for you and should remind you that taking part in any clinical research study (including this one) is a voluntary decision. However, please be reassured that if you or your loved one does take part, we’ll try to make sure you – or your loved one – are as comfortable as possible at every stage of the study. And if you change your mind about being involved, that’s fine. Just let us know that you’d no longer like to take part.
Why don’t donors have to have Alzheimer’s disease?
Unaffected tissues are known as ‘control tissues’ and they help us to make sure any differences between participants are due to Alzheimer’s, and not some other factor. Comparing the results of people with Alzheimer’s to those with healthy brains is a vital part of the study.
Will there be any cost to the family?
No – all study-related procedures are provided free of charge. Reimbursement for time and travel may also be available.